Quoting myself for a little follow up.
After 6 rounds, the levels were really low, but there, so we moved to a trial oral drug. A couple of weeks into that, the cancer cells showed strong signs of regeneration. It's not back yet, but it's coming sooner than later. So, we are going to transplant as soon as we get insurance approvals (our medical system is broken) and get a donor set up. Donors are identified, but they can't schedule until insurance is approved.
Basically, once we're all set, I'm going to Houston for roughly 100 days, 30ish in the hospital and 70ish isolated in an apartment near MD Anderson. I can have one visitor at a time and need 24/7 monitoring when I get to the apartment. I can't see my kids (3 and 6) the whole time we're going through this as they are germ factories. I'm going to be super tired and beaten down the entire time and the recovery is brutal. That's if things go great.
There is a also a 10-15% chance of mortality. So, I could leave my house in a few weeks and never see my kids again. I know that's true of everyone at any time, but it's different when you're choosing (right or wrongly) to put yourself in that position. The good news is I am a healthy (you know, other than cancer) 41 year old with very good donor matches. I am also going to be at MD Anderson where they do this all of the time and have a whole floor of just bone marrow transplants. That decreases the mortality chances.
It's going to be tough road, but as long as I get to the other side, I don't care how hard it is. Godspeed to all of you guys.