Update on my dad. He has a rare form of cancer called a Chordoma (Gary Senise’s son had it as well but his was in his brain stem/upper spinal cord). My dad’s chordoma is in his tailbone.
He’s been going down to MD Anderson every three months or so for MRI, CT Scan, and blood work, monitoring the size and growth of the tumor. It’s sitting right inside his tailbone and pushing on his sciatic nerve, causing terrible pain in his lower back and traveling down the back of his leg along his hamstring and into his feet. He went down to MDA about a month ago and found it hadn’t grown. Two weeks later, he had been hiding from my mom and I that he’d been in terrible pain, couldn’t sleep, etc. He went to an urgent care and took some shot that I can’t remember the name of and is able to sleep now. He’s been taking so many different meds (muscle relaxers, pain meds). I told my mom that she needs to take all the meds and be the pharmacist. I’m afraid he’ll take some stuff and not know what he’s taking. Hell, 3 weeks ago, I threw my back out and was laid up for a week and I didn’t even need to go get a prescription because he had everything the doctor I went to see told me he was going to write me a script for. That’s when I knew it was bad.
Anywho, he’s supposed to be going back down in April and starting Keytruda. The cancer is so rare that no one really knows how to treat it. They want him to be the guinea pig.
He’s also unimpressed with how MDA is running now compared to what it was in 2016 when he was last there.
Sorry for the long post. Y’all keep up the good fight.