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I caught the cancer


Burt

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I've finished most chores and now just sitting in the waiting room while getting car worked on, so I will add another thought. Prostate cancer guys, don't dawdle. The primary (the prostate gland) is a relatively "easy" cancer, but if you fiddle fuck around and let it metastasize you should look for your important papers and go over them with your family. I don't know why, but prostate metastatic lesions will lead you down a trail of miserable treatments for a couple of years ending in death. 

More on the dribbles, I read a post in a prostate cancer forum once. The quote:

"A dead man has little use of a dry pair of Levis".

Have a nice day.

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2 minutes ago, Not that Bob said:

I've finished most chores and now just sitting in the waiting room while getting car worked on, so I will add another thought. Prostate cancer guys, don't dawdle. The primary (the prostate gland) is a relatively "easy" cancer, but if you fiddle fuck around and let it metastasize you should look for your important papers and go over them with your family. I don't know why, but prostate metastatic lesions will lead you down a trail of miserable treatments for a couple of years ending in death. 

More on the dribbles, I read a post in a prostate cancer forum once. The quote:

"A dead man has little use of a dry pair of Levis".

Have a nice day.

Cosign for my father-in-law.  He passed one year ago.  His prostate cancer metastasized virtually everywhere.  No chance.  Now, he was plenty old and he lived an incredible life, but he wasn't ready to go, either.

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Cosign for my father-in-law.  He passed one year ago.  His prostate cancer metastasized virtually everywhere.  No chance.  Now, he was plenty old and he lived an incredible life, but he wasn't ready to go, either.
That was my depression era father.  Tough guy, self-made man, but just like he would not fall for the banana in the tailpipe, neither would he agree to a finger in the butt hole.
He avoided checks until he was having problems - and when he finally went to the doc, it had metastasized from his prostate to his bones and lungs and everywhere.  
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Miralax mixed with a healthy dose of Metamucil. Adjust to your personal preference. Follow up with Tux wipes. Keep the Tux wipes container, fill it with unscented baby wipes then fill with witch hazel. Homemade Tux wipes. 

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13 minutes ago, Not that Bob said:

Miralax mixed with a healthy dose of Metamucil. Adjust to your personal preference. Follow up with Tux wipes. Keep the Tux wipes container, fill it with unscented baby wipes then fill with witch hazel. Homemade Tux wipes. 

But maybe I like the 10" dildos?

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Miralax mixed with a healthy dose of Metamucil. Adjust to your personal preference. Follow up with Tux wipes. Keep the Tux wipes container, fill it with unscented baby wipes then fill with witch hazel. Homemade Tux wipes. 

Skip the wipes and get a bidet. Your asshole with thank you.
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39 minutes ago, Goofyboy said:


Skip the wipes and get a bidet. Your asshole with thank you.

Agree but the purpose of the wipes is the application of the witch hazel so both actions are needed. I guess I thought the bidet would be assumed. My mistake. 

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I’ve become very knowledgeable on prostate cancer. To echo others’ comments there are a tremendous number of different treatment options depending upon the level of cancer you have and the type of tumors. 

If possible you should get a Decipher test which will tell you how fast the tumors grow. And if your cancer score is low enough you might be able to go on Active Surveillance for several years without treatment. Conversely aggressive tumors need quicker treatment. 

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Dadgum ol MRI scan man this mornin I tell yew wut mannnn old GOWGAGOWGAGOWGAGOWGA reeereeeereeereeee. Like the worst concert you've ever been trapped at.

They have yet to have a specialist go over it and ID every almost-invisible mosquito-fart of a micro-tumor, but Doc says it looks pretty good to his Mk. 1 eyeball.

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Dadgum ol MRI scan man this mornin I tell yew wut mannnn old GOWGAGOWGAGOWGAGOWGA reeereeeereeereeee. Like the worst concert you've ever been trapped at.
They have yet to have a specialist go over it and ID every almost-invisible mosquito-fart of a micro-tumor, but Doc says it looks pretty good to his Mk. 1 eyeball.

You took out your buttplug, right? I read that in an MRI, they can turn into an “anal rail gun.”
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On 6/2/2024 at 9:04 PM, Judge Roybeanbag said:

Gee thanks.  😂

Yeah, unfortunately it’s hard to sugar-coat this one. When I walked into the room, the speculum that I recognized for ultrasounds during my wife’s pregnancies was there and I thought “nah, they have to have something else.” (Narrator: they don’t). They take twelve cores and evaluate each. Taking the cores is minor as by now they’ve hit you with the anesthetic. I’d liken it to being lightly snapped with a rubber band. It’s not fun, but get it done. As said in a few posts above, this is one you can get at early. Don’t put it off. And the Decipher test may not be offered by your urologist, but they’ll order if you ask. This will tell you how aggressive your lesion is and can help guide treatment. 
If it helps, I did NOT want radiation therapy unless absolutely necessary. Thankfully, my lesion was well contained in the prostate so surgery was easy choice.  We “shopped” for a surgeon we felt good about and came highly recommended, with vast experience with the Da Vinci nerve-sparing procedure. Remember you can always add a dose of RT later if needed, but RT mutates things such that it makes subsequent nerve-sparing surgery extremely difficult if not impossible.  I’m not an MD so take my opinion with the appropriate grain of salt, but thought I’d share a brief view of my thought process. 

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9 minutes ago, Frieda’s Boss said:

Yeah, unfortunately it’s hard to sugar-coat this one. When I walked into the room, the speculum that I recognized for ultrasounds during my wife’s pregnancies was there and I thought “nah, they have to have something else.” (Narrator: they don’t). They take twelve cores and evaluate each. Taking the cores is minor as by now they’ve hit you with the anesthetic. I’d liken it to being lightly snapped with a rubber band. It’s not fun, but get it done. As said in a few posts above, this is one you can get at early. Don’t put it off. And the Decipher test may not be offered by your urologist, but they’ll order if you ask. This will tell you how aggressive your lesion is and can help guide treatment. 
If it helps, I did NOT want radiation therapy unless absolutely necessary. Thankfully, my lesion was well contained in the prostate so surgery was easy choice.  We “shopped” for a surgeon we felt good about and came highly recommended, with vast experience with the Da Vinci nerve-sparing procedure. Remember you can always add a dose of RT later if needed, but RT mutates things such that it makes subsequent nerve-sparing surgery extremely difficult if not impossible.  I’m not an MD so take my opinion with the appropriate grain of salt, but thought I’d share a brief view of my thought process. 

Thanks.  Couldn’t get an appointment with the urologist until mid-July, so we’ll see how that goes.

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  • 3 weeks later...

N to the f’n ED man!  That is the happiest I’ve been for a nauseous, vomiting man in some time. 

Did my senile self ever suggest the dissolving Zofran over the pill form? They were like two different drugs to me, the former actually working.

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1 hour ago, Sbbruin said:

It does.  Lost my mom to oral cancer.

Haven't checked in for some time.  Got my latest CT scan back last week.  All clear.  My digestion is still all fucked up (lots of nausea and vomiting) from my replumbing, but a small price to pay.  Can now go from every 3 month scans to every 6 months.

 

tiger-tiger-woods.gif

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N to the f’n ED man!  That is the happiest I’ve been for a nauseous, vomiting man in some time. 
Did my senile self ever suggest the dissolving Zofran over the pill form? They were like two different drugs to me, the former actually working.

I had the dissolving ones. They definitely worked pretty well for me. Good thing too, since I ended up being allergic to fosaprepitant.
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23 hours ago, Gatorubet said:

N to the f’n ED man!  That is the happiest I’ve been for a nauseous, vomiting man in some time. 

Did my senile self ever suggest the dissolving Zofran over the pill form? They were like two different drugs to me, the former actually working.

Switched to Reglan from Zofran as the zofran wasn't really working.  But neither is the Reglan, so maybe I'll give it a go.  Have puked twice at work today.

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Door lady just passed this AM.  She was pretty private.  Wife was close to her and took just them two out to dinner for her bday last year.  35 and gone.  Fucking horrible.  Don't know exact cancer it was but for the millionth time, FUCK CANCER. 

 

1 hour ago, Sbbruin said:

Switched to Reglan from Zofran as the zofran wasn't really working.  But neither is the Reglan, so maybe I'll give it a go.  Have puked twice at work today.

Keep up the good fight brother bruin.  In my experience (personal and professional) zofran is usually more effective but totally agree with trying different things.  

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  • 2 weeks later...

Our old nanny called us on Wednesday to tell us that she was in the hospital with AML leukemia, which is the exact thing I have been fighting for 2 years. It’s really crazy. She was our nanny 2 years ago when I was first diagnosed and treated.

She is 31/32, so she’s young and in good shape. No other morbidities that I am aware of and she got down to MDA today. So, hopefully she’s in a good spot but super sad. Her brother committed suicide about 3 months ago, so her parents are still shell shocked from that.

She is still in total shock and denial. My wife and I have told her the same thing about being in the hospital and not being able to leave for a month like 4 times and she just does not hear us. She keeps asking us when she can go home and tried to check into a hotel tonight before being turned away. They honestly may need to sedate her over the next month to get through it.

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On 10/27/2023 at 10:08 AM, woohorn said:

To be more helpful - all this started for me because at 56 I had a 4.79 PSA at physical in April with no prostate/ED symptoms and a passed digital rectal exam. Take advantage of any early warning signs you are given.

Shit, this is me (54) rn.

I'm lowkey petrified I have it and can't shake this foreboding sense of doom that's been looming over me since my routine physical last month where my blood tests came back less than great (pre-diabetic, high blood pressure, elevated PSA of 4.8).

My pcp referred me to a urologist and rather than sticking his finger up my ass he ordered an MRI to get a better picture of exactly what's going on. I had the MRI last night and now I'm waiting for a follow up in a couple of weeks from my urologist to go over the results.

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Shit, this is me (54) rn.
I'm lowkey petrified I have it and can't shake this foreboding sense of doom that's been looming over me since my routine physical last month where my blood tests came back less than great (pre-diabetic, high blood pressure, elevated PSA of 4.8).
My pcp referred me to a urologist and rather than sticking his finger up my ass he ordered an MRI to get a better picture of exactly what's going on. I had the MRI last night and now I'm waiting for a follow up in a couple of weeks from my urologist to go over the results.

I’m sorry you were denied the pleasure of a finger up your ass. Maybe the wife could help?
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24 minutes ago, Gourmand said:

Shit, this is me (54) rn.

I'm lowkey petrified I have it and can't shake this foreboding sense of doom that's been looming over me since my routine physical last month where my blood tests came back less than great (pre-diabetic, high blood pressure, elevated PSA of 4.8).

My pcp referred me to a urologist and rather than sticking his finger up my ass he ordered an MRI to get a better picture of exactly what's going on. I had the MRI last night and now I'm waiting for a follow up in a couple of weeks from my urologist to go over the results.

As I posted in the old man thread, I’m a heavy researcher and I now know a lot about prostate cancer, BPH and treatments, and enlarged prostates. Feel free to DM me with questions or post here. 

When I first got diagnosed, I was fortunate to have a good friend who is friends with one of the country’s foremost experts in prostate cancer. I learned a lot of eye opening things from going down that path. 

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43 minutes ago, Brisketexan said:


I’m sorry you were denied the pleasure of a finger up your ass. Maybe the wife could help?

she surprised me with a beej and said FUMA last night after I fell asleep. i think my enema talk (prep for the MRI) got her going.

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Shit, this is me (54) rn.
I'm lowkey petrified I have it and can't shake this foreboding sense of doom that's been looming over me since my routine physical last month where my blood tests came back less than great (pre-diabetic, high blood pressure, elevated PSA of 4.8).
My pcp referred me to a urologist and rather than sticking his finger up my ass he ordered an MRI to get a better picture of exactly what's going on. I had the MRI last night and now I'm waiting for a follow up in a couple of weeks from my urologist to go over the results.
No need to worry yet. Elevated PSA could be from biking/exercise/sex within a couple days of the test or an infection. Did you take a course of antibiotics and retest PSA?

You're youngish for PC so if there are any issues you prolly caught them early GL!
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Just now, woohorn said:

No need to worry yet. Elevated PSA could be from biking/exercise/sex within a couple days of the test or an infection. Did you take a course of antibiotics and retest PSA?

You're youngish for PC so if there are any issues you prolly caught them early GL!

yeah that's true and my wife has been telling me to stop worrying about it as well until I know for sure. urologist said it could just be an enlarged prostate causing that elevated number. 

it's just a gut instinct I have that I can't really shake. My 82 yo mother has been fighting lung cancer (went to her brain as well) for a few years now so I'm sure that's feeding into my mental state. She's been through much of what RDCaneCutter has been through wrt treatment regimen, couple of brain surgeries along the way. Unfortunately we haven't been on great terms, on-again/off-again relationship through all of it, so there's a fucked up part of me that is convinced I'm gonna get it to walk a similar road as mom. 

Reading this thread is a real perspective punch in the face and y'all fighting it and talking about it are heroes. 

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10 minutes ago, woohorn said:

Urologist also ran a more "advanced" PSA test (4K PSA test) and evaluated results before my MRI. You going right to MRI?

You at the VA or in Canada or some shit?

Well he said we had two options: either opt for the biopsy in which case he'd be blinding sticking that needle up my ass or I could do the MRI first so he would have a better idea of what my prostate situation is and where to aim the needle in the event the biopsy is needed. That biopsy scares the bejeezus out of me.

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2 hours ago, Gourmand said:

Well he said we had two options: either opt for the biopsy in which case he'd be blinding sticking that needle up my ass or I could do the MRI first so he would have a better idea of what my prostate situation is and where to aim the needle in the event the biopsy is needed. That biopsy scares the bejeezus out of me.

Praying for you Gourmand. I was in this spot about a year ago with an elevated PSA (at 48 yo). Did another 30 days later to confirm, then biopsy (not gonna lie, it sucks).  From there it was figuring out treatment options and interviewing MDs.  I am now ~7 months post prostatectomy. Happy to share my experiences if helpful.  

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On 2/9/2024 at 10:51 AM, RDCanecutter said:

Now to avoid falling down the stairs.

About that...

We have a bottom step on the staircase that in low light pulls the optical illusion of being the floor. Years ago I learned to hold the banister and assume the steps were trying to kill me.

But the other day I was in Lala Land as I skipped down the stairs carrying a Macbook Pro and various crap, then next I knew I was back-flipping onto steps and clumping down them on my butt and backbone. Just laid at the bottom for a sec crumpled up between my wife's newest vacuum machine, Tupperware tubs of Art Show shit, and blood from a right elbow possibly due to smashing the face plate on a light switch.

Macbook Pro held up great after flying in the air and hitting the floor. A childhood of jumping bikes over ditches saw me through as well. No cyborg spider-body replacement yet.

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  • 2 weeks later...
On 7/24/2023 at 10:28 AM, Wally Fairway said:

I finally have the update on Mrs. Fairway - 2nd biopsy results last week; clear margins. She is now on a dermatologist check every 3 months for the next 3 years, then maybe every 6 months. She is thrilled with the results; I wanted her to see an oncologist; but after I called the best one around here (UM Medicine Skin Cancer/Dermatoligy) they confirmed that with those results that she would see the dermatologist there and until there was a 2nd positive test they don't get a full oncology review or start a body scan to see if has progressed to other places (lymph nodes are most likely - so says Dr. Google) 

Apparently that was not the final update, Mrs Fairway had some nasal issues in mid July. Short version is biopsy was tested twice and results posted to her my chart Wednesday listing mucosal melanoma, MRI a yesterday (that was ordered the same time the 2nd test on biopsy). Haven't heard from her Dr yet, because I presume they are waiting for the MRI to be read. 

We aren't waiting, finished MD Anderson new patient enrollment package yesterday, and should hear back from them on Monday or Tuesday. 

I don't like what Dr Google is telling me, but it's better than waiting for the Dr to call.

Houston, here we come

Fuck cancel

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47 minutes ago, Wally Fairway said:

Apparently that was not the final update, Mrs Fairway had some nasal issues in mid July. Short version is biopsy was tested twice and results posted to her my chart Wednesday listing mucosal melanoma, MRI a yesterday (that was ordered the same time the 2nd test on biopsy). Haven't heard from her Dr yet, because I presume they are waiting for the MRI to be read. 

We aren't waiting, finished MD Anderson new patient enrollment package yesterday, and should hear back from them on Monday or Tuesday. 

I don't like what Dr Google is telling me, but it's better than waiting for the Dr to call.

Houston, here we come

Fuck cancel

I am so sorry you both are going through this. 

Glad you are getting to Houston ASAP. They really are world class. 

It is going to be hard not to read google, but if I thing I have learned is NO good can come from that right now. 

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7 hours ago, Wally Fairway said:

Apparently that was not the final update, Mrs Fairway had some nasal issues in mid July. Short version is biopsy was tested twice and results posted to her my chart Wednesday listing mucosal melanoma, MRI a yesterday (that was ordered the same time the 2nd test on biopsy). Haven't heard from her Dr yet, because I presume they are waiting for the MRI to be read. 

We aren't waiting, finished MD Anderson new patient enrollment package yesterday, and should hear back from them on Monday or Tuesday. 

I don't like what Dr Google is telling me, but it's better than waiting for the Dr to call.

Houston, here we come

Fuck cancel

While you're at Anderson go have a meal in the main dining room. It's a little better than standard hospital food, but that's not the point. The point, just sit and look around you. You are sitting in a forest of IV poles with the strongest, bravest, baddest men, women and children ever to inhabit the earth. Teenagers, little kids, old people. They are fighting the hardest fight of their lives. A fight that, dear God, I hope I never have to fight.  Those people are heroes to me.

For me, it was a spiritual experience which I will carry with me forever. You may want to think twice about taking your wife with you. Wait until you think she can take the emotional experience. It brought tears to my eyes and I wasn't even a patient. I was just a little man, sitting and having lunch with a group of giants. 

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7 hours ago, Wally Fairway said:

Apparently that was not the final update, Mrs Fairway had some nasal issues in mid July. Short version is biopsy was tested twice and results posted to her my chart Wednesday listing mucosal melanoma, MRI a yesterday (that was ordered the same time the 2nd test on biopsy). Haven't heard from her Dr yet, because I presume they are waiting for the MRI to be read. 

We aren't waiting, finished MD Anderson new patient enrollment package yesterday, and should hear back from them on Monday or Tuesday. 

I don't like what Dr Google is telling me, but it's better than waiting for the Dr to call.

Houston, here we come

Fuck cancel

Fuck.  So sorry to hear this update.

Do NOT go down the google hole.  I did when I was first diagnosed and thought I was basically a dead man walking.  A lot of the info is older and takes in huge sample sizes and treatment at all manner of locations.  You're going to one of thebest in the country.  She's got this.

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  • 2 weeks later...
On 8/9/2024 at 5:35 PM, Sbbruin said:

Fuck.  So sorry to hear this update.

Do NOT go down the google hole.  I did when I was first diagnosed and thought I was basically a dead man walking.  A lot of the info is older and takes in huge sample sizes and treatment at all manner of locations.  You're going to one of thebest in the country.  She's got this.

Sitting at MD Anderson awaiting our first appointment of 5 appointments and 4 tests over the next 3 days. Feels like I'm staring into the abyss, trying to be cautiously optimistic and struggling not to see it as a black hole. 

No idea what the path looks like after Thursday. Change is certain....fuck cancer. Putting our faith in the hands of the best cancer treatment there is.

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Sitting at MD Anderson awaiting our first appointment of 5 appointments and 4 tests over the next 3 days. Feels like I'm staring into the abyss, trying to be cautiously optimistic and struggling not to see it as a black hole. 
No idea what the path looks like after Thursday. Change is certain....fuck cancer. Putting our faith in the hands of the best cancer treatment there is.

Been there at MDAnderson playing the waiting game. It was weird that I didn’t get as bent as I figured I would, because it absolutely sucks. I think being at the best cancer hospital in the world helped - the fuck else are you going to do? Time to have at it. FWIW, I’m still here, considered cured, seven years later. Jump in with both feet and have some Xanax.
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On 3/28/2018 at 1:13 PM, Burt said:

At least its "only" skin cancer (basal cell carcinoma) instead of something more serious.  I'm not trying to garner sympathy, just wondering if anyone else here has had it and what everything looked like after the removal.  Mine is on my left cheek about an inch under my eye.  Probably from years of softball and lake outings, often without sunscreen.  I already have a scar on the eyelid above the eye from a sucker punch and dont want a huge scar below it as well.

I place the blame for this squarely on the head of Kevin Morgan.

Had a squamous cell removed from my ear a few years back. Caught my attention. Now I’m all over my kids making sure they’re wearing sun protection. My parents never did. So I guess it’s a good thing.

on the broader subject, my Dad and brother both had bouts with Prostate cancer. So yeah that screening is happening every year. 

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3 hours ago, Wally Fairway said:

Sitting at MD Anderson awaiting our first appointment of 5 appointments and 4 tests over the next 3 days. Feels like I'm staring into the abyss, trying to be cautiously optimistic and struggling not to see it as a black hole. 

No idea what the path looks like after Thursday. Change is certain....fuck cancer. Putting our faith in the hands of the best cancer treatment there is.

You got this.

 

On 7/24/2024 at 8:17 PM, Gourmand said:

I'm lowkey petrified I have it and can't shake this foreboding sense of doom that's been looming over me since my routine physical last month where my blood tests came back less than great (pre-diabetic, high blood pressure, elevated PSA of 4.8).

About bad numbers, I had that a few years back after a lifetime of being effortlessly healthy. Pissed me off. The cure for a lot of it is simple: walk about a mile a day. Half a mile if you're worn out, 2 miles if you're feelin frisky. Took about a month and then my numbers were respectable again.

Probably won't get rid of cancer, but it will make your body hold up better under treatments. Plus I always figure they may run short of the good stuff and I wanna look like I'm a good bet to give it to.

In any case, I wish you good results and a long life doing stuff you like.

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