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I caught the cancer


Burt

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12 hours ago, seven said:

Two weeks in the hospital, got out this afternoon. I've been blasting/dribbling liquid out of my ass every 1-3 hours for 3 days with no end in sight. I know this will be worth it in the end but right now my butthole thinks I'm a real jerk. 

While this is still going on, fly to Manzanillo and go to this one seafood place I visited. When they come to take your order, Just tell em "No need, I already got what y'all gave to RDCanecutter."

No wait. I told it wrong. It was the deli hot lamp fried chicken in that grocery store that abutted that little mall in Colima, Plaza San Fernando I think it was. Except Street View tells me the grocery is gone and there's a movie theater. Now the joke might still work-- in Mexico you can walk into a cinema, plop down 5 bucks worth of pesos, get a movie ticket, drink, and some sort of big-ass hotdog. OK, with inflation maybe budget 7 bucks. Now the enjoyment might be lessened by shitting all over the seat, but they generally have an intermission down there so you can go wipe your ass and then come back in the dark and choose a new seat.

Edited by RDCanecutter
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2 hours ago, Judge Roybeanbag said:

Couldn’t edit my last post but that was it exactly.   9mm lesion on the apex, 3+4 and no input yet on the genetic aggression thing, whatever that. Is.  

Praying for you JR. I also went radical prostatectomy via da Vinci at 48. Gleason score of 7.  My Decipher genomic test came back that I had a more aggressive type so glad we were on it early.  9 months post surgery and I’m pretty well back to normal. Happy to share any of my experience if helpful. Feel free to ask away here or shoot me a DM. 

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17 hours ago, Frieda’s Boss said:

Praying for you JR. I also went radical prostatectomy via da Vinci at 48. Gleason score of 7.  My Decipher genomic test came back that I had a more aggressive type so glad we were on it early.  9 months post surgery and I’m pretty well back to normal. Happy to share any of my experience if helpful. Feel free to ask away here or shoot me a DM. 

I might hit you up, my next consultation is in a week.  Appreciate you sharing.

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3 hours ago, RDCanecutter said:

Tumor in the head is GONE, maaaaan.

That’s great and all man…. but you do realize you’ve just lost your best excuse for the shit that comes out of your mouth.

Edited by Gatorubet
if it got lonesome for Ceti Alpha 5, who are we to judge?
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On 9/11/2024 at 1:02 AM, Frieda’s Boss said:

Praying for you JR. I also went radical prostatectomy via da Vinci at 48. Gleason score of 7.  My Decipher genomic test came back that I had a more aggressive type so glad we were on it early.  9 months post surgery and I’m pretty well back to normal. Happy to share any of my experience if helpful. Feel free to ask away here or shoot me a DM. 

Good to hear, curious who/where you had do the surgery.   Pm me if you’re not comfortable sharing with the rest of these miscreants.   I’ve had some concerns about surgery but good to hear you are back to relative normal.

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9 hours ago, Judge Roybeanbag said:

Good to hear, curious who/where you had do the surgery.   Pm me if you’re not comfortable sharing with the rest of these miscreants.   I’ve had some concerns about surgery but good to hear you are back to relative normal.

I’m in SoCal (OC) so I’m not sure I’m going to be able to help with specifics on MDs. I will say, we interviewed 4 or 5 and had a lot of questions regarding how many procedures they’ve done, would it be them personally or a fellow, rates of recovery, nerve-sparing process, etc. I knew I didn’t want radiation therapy  unless it absolutely looked necessary. From what I understand (by all means, do your research), RT is hard on you and mutates the tissue in the area such that if you do have to go in for a subsequent surgery, then there’s little chance of salvaging anything (particularly nerves) so “function” is highly unlikely and incontinence is highly likely. My thought was the chance for best outcome was surgery first and then RT if necessary.

If it can be a help to you or anyone else, I’m happy to share anything here about procedure itself, recovery, lingering effects (“function”, incontinence), things I didn’t expect, etc. So feel free to fire away as questions or concerns arise. 
 

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My stepmother passed away this past weekend from a severe stroke - lots of bleeding all over her brain. Final MRI revealed cancer from her adrenal gland that had seeped it's way into the brain. Nobody had any idea. She was in good health for a 73yo. Get your shit checked out on the reg everyone. 

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Sorry to hear that fico. Good to see y’all are on alert for your pops, very similar situation with my parents in reverse, mom took care of dad for 5 yrs. Been over 6 months since he passed and I’m afraid she’s never gonna be her old self. 

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  • 2 weeks later...

So... My dad just dropped the bomb... He caught the C. 70yo, probably healthier than me. Ok... Definitely healthier than me. No smoke no drink and walks 18 every day. 

It's "just" prostate cancer and they caught it early, but his PSA has been crazy for a decade. Low of 5 and high of 10. But this is the first time they've actually found anything. 

Doc wants to just cut it out and be done but he's scared of that due to buddies going through the same shit and having to wear diapers and urethra mesh and blah blah blah. 

Supposedly, under the right circumstances, which we don't know if they exist yet or not, there is a relatively new treatment where they laser off the cancerous cells and leave the prostate intact. Anyone know fuck all about any of that shit?

I can't lose my dad. Not yet. I don't give a fuck if he wears a diaper. But he does. FUCK!

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47 minutes ago, pops said:

So... My dad just dropped the bomb... He caught the C. 70yo, probably healthier than me. Ok... Definitely healthier than me. No smoke no drink and walks 18 every day. 

It's "just" prostate cancer and they caught it early, but his PSA has been crazy for a decade. Low of 5 and high of 10. But this is the first time they've actually found anything. 

Doc wants to just cut it out and be done but he's scared of that due to buddies going through the same shit and having to wear diapers and urethra mesh and blah blah blah. 

Supposedly, under the right circumstances, which we don't know if they exist yet or not, there is a relatively new treatment where they laser off the cancerous cells and leave the prostate intact. Anyone know fuck all about any of that shit?

I can't lose my dad. Not yet. I don't give a fuck if he wears a diaper. But he does. FUCK!

Just the medical opinion of an Art major, but if they caught it early, why not try the laser, and if it doesn't work, go with more traditional treatments? 

He sounds healthy enough to bear up under various drugs and their glorious side effects.

Sounds like he's pretty tough. Go kill that cancer!

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On 9/23/2024 at 9:58 AM, GTX Horn said:

My dad finally finished his chemo for follicular lymphoma. Met with the oncologist last week and it seems that the treatment did the job. He did stop short of saying he was in “remission” simply because this is form of lymphoma is indolent and basically incurable. The most recent scan did show no evidence of cancer, so obviously that’s a huge win.

He’ll still receive maintenance immunotherapy infusions every six weeks for the next two years, but thankfully the immunotherapy is much easier on him than the chemo. Now, it’s just a matter of keeping an eye on his blood work and doing the best we can to stay safe in cold and flu season with his compromised immune system.

Good for Dad.

My Mom was diagnosed with early stage follicular lymphoma at age 70, participated in 2 clinical trials at MD Anderson, the cancer disappeared both times but came back later.

Finally they went with the standard of care, which I believe included Rituximab as the main treatment, and has been cancer free for at least 10 years. She’s currently 87 years old, of sound mind, still driving, living an active life.

All of that to say, they have a pretty good track record with FL. There is a standard of care that seems to have good results with a lot of patients. Be optimistic, if my Mom’s experience is any indication, your Dad will be around for a while.

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Update on my dad.  He came back down to MDA and met with the surgeon, oncologist, and PA.  If you recall upthread, he has a rare form of cancer called spinal chordoma. It's literally 1 in a million as 300 people are diagnosed with it every year in the US. 

They gave him three options:

1. Have part of his spine cord cut out as they can't remove the entire thing without also putting out a portion of his spinal cord.  This would involve him having to wear a colostomy bag and have a catheter the rest of his life (he's 73 by the way).  The lower sections of the spinal cord control bladder and bowels and he would lose that ability to control himself.  My dad literally said "fuck that, next".

2. Treat with high-dose radiation therapy.  With this therapy, there is a risk that he would also lose control of his bladder and bowels.

3. Monitor with MRIs/CT scans for the remainder of his life.  My dad's thoughts here were that this has been showing up on CT scans since his last round of treatment for something unrelated to the chordoma.  My mom and I both think this is what he'll end up doing.  However, this runs the risk that the tumor can grow to the point where he can no longer control his bladder and bowels.  Or it could spread to his lungs.  He has a history of smoking and obesity so I would imagine it will likely move up to his lungs but I'm not a doctor.

They came down for another MRI last week and got on a plane to Scandinavia to get on a cruise ship for 2 weeks.  I think he'll decide over there.

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On 10/10/2024 at 11:37 AM, pearlandhorn said:

Update on my dad.  He came back down to MDA and met with the surgeon, oncologist, and PA.  If you recall upthread, he has a rare form of cancer called spinal chordoma. It's literally 1 in a million as 300 people are diagnosed with it every year in the US. 

They gave him three options:

1. Have part of his spine cord cut out as they can't remove the entire thing without also putting out a portion of his spinal cord.  This would involve him having to wear a colostomy bag and have a catheter the rest of his life (he's 73 by the way).  The lower sections of the spinal cord control bladder and bowels and he would lose that ability to control himself.  My dad literally said "fuck that, next".

2. Treat with high-dose radiation therapy.  With this therapy, there is a risk that he would also lose control of his bladder and bowels.

3. Monitor with MRIs/CT scans for the remainder of his life.  My dad's thoughts here were that this has been showing up on CT scans since his last round of treatment for something unrelated to the chordoma.  My mom and I both think this is what he'll end up doing.  However, this runs the risk that the tumor can grow to the point where he can no longer control his bladder and bowels.  Or it could spread to his lungs.  He has a history of smoking and obesity so I would imagine it will likely move up to his lungs but I'm not a doctor.

They came down for another MRI last week and got on a plane to Scandinavia to get on a cruise ship for 2 weeks.  I think he'll decide over there.

Sucks when every choice has bad consequences. Without knowing more and thinking about myself, I would go between 2 and 3. If 3, I would be curious as to the growth rate. 

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33 minutes ago, Nice Guy Eddie said:

Sucks when every choice has bad consequences. Without knowing more and thinking about myself, I would go between 2 and 3. If 3, I would be curious as to the growth rate. 

i’m sorry to hear all that Buddy. It looks like 1 and 3 are more of a certainty of loss of bowel function, (with 1 happening quicker than 3).

While that might also happen in 2 - at least option 2 seems like its a possibility and not a given. 

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16 hours ago, Nice Guy Eddie said:

Sucks when every choice has bad consequences. Without knowing more and thinking about myself, I would go between 2 and 3. If 3, I would be curious as to the growth rate. 

That's where he's leaning.  MRI next week will show growth rate over the last month/6 weeks.  We'll see.  It's a waiting game.

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  • 2 weeks later...
On 10/31/2024 at 10:14 PM, Sbbruin said:

I'm sorry I haven't checked in on this thread in a bit. I praise all you warriors. Fuck cancer in the anus.

Uh, the cancer is already in my anus, I'm not sure I agree with your suggestion. 

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1 hour ago, seven said:

Uh, the cancer is already in my anus, I'm not sure I agree with your suggestion. 

Well then, you may have to play catcher, but someone would be fucking the cancer in your anus.  Sorry, couldn't help myself.

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3 hours ago, RDCanecutter said:

Cancer-wise we are in a zone of talking about a millimeter's growth or shrinkage of this or that tumor. One day we will call this "The Good Old Days."

Lenvima is doing a stress test on my arteries, jacking up blood pressure. They've got me on four blood-control pills and it still sucks. Goes back to near-normal if I skip Lenvima, but that would be to miss the point of the assignment. Luckily my mental comfort zone is when I'm trying to make it to the green fields of England with #3 prop feathered and hydraulics lines shot out. We're fine.

OH. And got a job in an art gallery. Part-time gig but a big damn deal as regards being part of society. I have 3 looks I can pull off:

1. Professor

2. Artist

3. Hobo.

Usually I'm slothing around the house as #3 but I am mixing the first two for the job. Owner encourages us to work on our art so it's like having a free-rent studio with foot-traffic (next to big locally-famous restaurant) where I'm paid to hang out. Owner knows my medical deal so is like "if it's a bad day or a doctor day, just don't worry about opening up."

Doesn't suck.

Austin? What gallery?

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4 hours ago, RDCanecutter said:

Cancer-wise we are in a zone of talking about a millimeter's growth or shrinkage of this or that tumor. One day we will call this "The Good Old Days."

Lenvima is doing a stress test on my arteries, jacking up blood pressure. They've got me on four blood-control pills and it still sucks. Goes back to near-normal if I skip Lenvima, but that would be to miss the point of the assignment. Luckily my mental comfort zone is when I'm trying to make it to the green fields of England with #3 prop feathered and hydraulics lines shot out. We're fine.

OH. And got a job in an art gallery. Part-time gig but a big damn deal as regards being part of society. I have 3 looks I can pull off:

1. Professor

2. Artist

3. Hobo.

Usually I'm slothing around the house as #3 but I am mixing the first two for the job. Owner encourages us to work on our art so it's like having a free-rent studio with foot-traffic (next to big locally-famous restaurant) where I'm paid to hang out. Owner knows my medical deal so is like "if it's a bad day or a doctor day, just don't worry about opening up."

Doesn't suck.

Are you in Fairhope? or is that the place they just tell hippies to go in AL?

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On 9/23/2024 at 9:58 AM, GTX Horn said:

My dad finally finished his chemo for follicular lymphoma. Met with the oncologist last week and it seems that the treatment did the job. He did stop short of saying he was in “remission” simply because this is form of lymphoma is indolent and basically incurable. The most recent scan did show no evidence of cancer, so obviously that’s a huge win.

He’ll still receive maintenance immunotherapy infusions every six weeks for the next two years, but thankfully the immunotherapy is much easier on him than the chemo. Now, it’s just a matter of keeping an eye on his blood work and doing the best we can to stay safe in cold and flu season with his compromised immune system.

May I ask, where are you having this done? Maintenance infusions every 6 weeks (I'm assuming Rituximab) is interesting. I've heard of maintenance every two or three months for 2 years but not 6 weeks. 

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19 hours ago, seven said:

That sounds great rd. Personally I have vowed to never do a day of work again. 

A starfish is not a fish, and gallery work is not work.

19 hours ago, Bevo said:

Austin? What gallery?

Austin art gallery? C'mon, I didn't inherit THAT much money...

19 hours ago, StassneyHorn said:

Are you in Fairhope? or is that the place they just tell hippies to go in AL?

I was in Fairhope but it was the 1980s. You just missed me, sorry. Hippies in Alabama end up living in abandoned farm houses in the Black Belt for 12 cents rent per month.

17 hours ago, jimmyjazz said:

Well, they can't have THAT many art galleries.

Their number is Legion, and they all earn about 12 cents a month, which will just cover your Hippy Black Belt Farmhouse.

6 hours ago, Gatorubet said:

Oh, I would not say the south is “deep”.

I don't get it.

----------

This particular gallery is in the rusty industrial town of Bessemer across from the Bright Star restaurant, whence you can hear the strains of Sinatra wafting on the breeze. Until I crank up the Hot Mix on Pandora to let people know we're open. The Good Art Company, come stalk us on Google street view, ya freaks. ;)

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On 11/1/2024 at 3:14 AM, Sbbruin said:

I'm sorry I haven't checked in on this thread in a bit. I praise all you warriors. Fuck cancer in the anus.

On 11/6/2024 at 9:27 PM, seven said:

Uh, the cancer is already in my anus, I'm not sure I agree with your suggestion. 

if Bruin tries to sell you an exorbitantly expensive ‘ChemoDick’, don’t fall for it. 

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13 hours ago, Sweetnsourpoke said:

May I ask, where are you having this done? Maintenance infusions every 6 weeks (I'm assuming Rituximab) is interesting. I've heard of maintenance every two or three months for 2 years but not 6 weeks. 

I was on Opdivo.  It was every 2 weeks for 3 months, and then once a month for the balance of the year.  I had to stop due to adverse reactions, but it was frequent.  And like $25K per pop.  Thank god for good insurance.

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8 hours ago, Sbbruin said:

I was on Opdivo.  It was every 2 weeks for 3 months, and then once a month for the balance of the year.  I had to stop due to adverse reactions, but it was frequent.  And like $25K per pop.  Thank god for good insurance.

This was following first round treatment for lymphoma? MD Anderson? 

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The docs are appalled that 4 blood pressure pills aren't getting the job done, so they've got me paused on Lenvima for  few days. Of course Keytruda is still coursing through my veins giving me inhuman strength.

BP is down a little already. If it stays lower I am also going to call an audible and skip Amlodipine until my swollen Popeye feet go down again.

We have an impromptu meeting at the UAB megaplex Tuesday, this time at the civilized hour of noonish. I will have time to hop on the 15 cent (if you are old) shuttle bus and eat something non-fastfood.

Kinda sucks having to call in on what would have been my second day of work, but lucky to know some docs who don't slack off.

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